Blog
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03
Mar
Childhood Cancer Advocates Speak Out to Congress
Last week almost 350 advocates from 40 states participated in 222 congressional meetings bringing the voice of the Childhood cancer community to Capitol Hill. We asked Congress
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30
Dec
The US Government has Abandoned Children with Cancer
Three hours before a scheduled vote in Congress, to the surprise of the country, the funding bills for childhood cancer fell apart. (December 2024) We have gone
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25
May
How to Stay Strong when Your Child has Cancer
Our daughter, Taylor, was diagnosed with cancer at the age of eleven. Overnight, our family was thrust into the world of pediatric cancer. We barely got our
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25
Jan
An important lesson
Our daughter, Taylor, was diagnosed with cancer at the age of eleven. Overnight, our family was thrust into the world of pediatric cancer. We barely got
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18
Jan
Lessons learned from my daughter who had #childhood cancer
My daughter, #TaylorMatthews, was diagnosed with #childhoodcancer at eleven years old. Her only symptom was shortness of breath while playing sports, which her pediatrician believed was caused by exercise-induced asthma.
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04
Jun
We Are All in This Together
Dear Friends, As I write to you, I struggle to make sense of what has happened in the last 90 days or so. A global pandemic has
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22
Oct
The Creating Hope Act
The Creating Hope Act pediatric priority review voucher program has been wildly successful. It is critical that Congress reauthorize the program permanently so that children with serious
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02
Sep
September is childhood cancer awareness month…. honor our children
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30
Apr
Childhood Cancer Bullying
Nationwide, children with cancer are 60% more likely to be bullied than their healthy classmates. CAC2 is committed to supporting those who have been hurt or harmed, to treating
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15
Feb
Meet Taylor
Taylor was a 16-year-old ambitious designer and entrepreneur. Taylor was determined to live life to the fullest, and wanted to be known as “a kid with cancer,
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24
Jan
New Hope for Children with Cancer… New Treatments
See article: https://www.wsj.com/articles/for-children-with-cancer-hope-for-new-treatments-11547561004?mod=mhp&fbclid=IwAR1cXoHYeQ4qjEnvcw DC69YeHgtTcWqsfQWcuwNinCkAMuXjr6G2KsWMmCg
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26
Nov
After Giving Thanks Is Giving Back
Some people give from the heart, some because they’re passionate about a cause and others pull from the traumatic life experiences they have been through to help
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09
Nov
Giving Tuesday-November 27th
For us #givingtuesday is about keeping my daughter, Taylor’s, wishes, hopes and dreams to help children with cancer eternal and to keep her spirit of “giving” alive.
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01
Oct
A Reflection
I am sitting on the floor in the Scarsdale/Yonkers Barnes & Noble children’s section where I frequented almost weekly with my three daughters when they were growing
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15
Sep
Advances in childhood cancer are NOT enough!
Childhood Cancer Summit 2018: As described below we have made many advances in childhood cancer. BUT it is not enough! At the summit a teenager, with cancer,
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05
Jul
Sue Matthews honored as a making a difference
This post is part of #GivingTuesday’s #WomenWhoGive series, which celebrates women who are making a difference in their communities. Sue Matthews, President,Taylor Matthews Foundation What inspired you
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29
May
It’s Time to Say Thank you to Our Champions in Congress
In 2008, I lost my sixteen-year-old daughter, Taylor, to pediatric cancer just days after she first received an innovative immunotherapy treatment in Germany. We travelled overseas because
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15
Feb
International Childhood Cancer Day
A Day of Gold Every year, February 15 is known as International Childhood Cancer Day – a day to increase awareness of pediatric cancer, support families in
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27
Nov
Pre-order Paint Your Hair Blue
A portion of all author proceeds from the sale of my memoir, Paint You Hair Blue, will be donated to the Taylor Matthews Foundation. Pre-order at www.paintyourhairblue.com
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27
Oct
Germphobes
You know that awful smell that hits you the second you walk onto a patient floor in a hospital. You can probably smell it now just
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10
Oct
Taylor and the New York City Marathon
The buzz about the New York City Marathon is starting. It reminds me of the last time I ran the marathon which was in 2009, the exact
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15
Aug
Signs from Taylor
On Taylor’s 25th birthday, my husband and I continued our tradition of bringing balloons to the cemetery along with flowers to plant around Taylor’s gravestone. I tied
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11
Aug
Having Fun
Even as a very young child, Taylor’s day was not complete unless it involved a lot of fun and at least a little bit of mischief. She
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31
Jul
Absent But Present
Taylor’s presence was always larger than life. Her smile, her humor, her mischievous eyes, and her life loving energy filled every room. The only thing as large
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26
Jul
Feeling Blessed
When people ask me what I do, they don’t know how to respond when I tell them I fight for increased awareness and funding for pediatric cancer.
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18
Jul
Fighting Back: A Legacy
We are a family that lost a beloved daughter and sister at the unthinkable age of 16. Our lives have been a journey of managing illness, grieving,
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27
Jun
What Can We Do?
When a child is sick, many kind people ask how they can help. And my advice on the issue is simple: let them. Throughout the years of
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12
May
Cancer Action Day on Capital Hill
The goal of the 2017 Childhood Cancer Action Day was to meet in person with Members of Congress and staff to share our stories and show
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31
Mar
Last day to submit a name of your loved one for the flag of HOPE
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31
Mar
Laughter Is The Best Medicine
Even during the bleakest periods of Taylor’s illness, there was nothing so life affirming as a full-on belly laugh. Right then, right there: in the hospital room,
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17
Mar
Getting Back to Life
The years spent tending to Taylor and then grieving her death were largely spent in the hospital or at home. After Taylor passed away, it was really
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22
Feb
Anniversaries
Anniversaries are memory markers – usually joyful and festive occasions that make us feel proud and content with our lives. However, when it’s the anniversary of your
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22
Jan
Changes
Whether it’s good or bad, change is difficult and disorienting. And even more so for those facing life crises. There’s no question that illness in the family
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31
Dec
Happy New Year…..May it bring everything you hope for.
The end of a year always brings a period of looking back and looking ahead. What kind of year did I have and what am I looking
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19
Dec
Connections
While you need your friends and family more than ever when illness strikes, nothing disconnects you more than illness. With a sick child, your life is taken
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