How to Stay Strong when Your Child has Cancer

Our daughter, Taylor, was diagnosed with cancer at the age of eleven. Overnight, our family was thrust into the world of pediatric cancer. We barely got our feet on the ground before we were bombarded with treatment plans, biopsy results, and words we couldn’t pronounce, let alone understand.

As I was trying to make sense of this new world into which I was suddenly thrust, my intuition reminded me that my most important job was to maintain my composure so as to not scare Taylor. I kept silently repeating to myself, No matter what, she has to believe that Mommy and Daddy will make everything all better. My instincts were spot on, but this was not always easy.

I learned a lifesaving lesson that worked for me throughout Taylor’s illness. I strived to compartmentalize my thoughts. I embraced all the joy and happiness on the good days, and on the days Taylor was suffering, I allowed the extreme sadness and anxiety to take control, although I always tried my best to hide it from Taylor. This allowed me to achieve my greatest victory, allowing Taylor to live every moment she could, as if she were just a kid with cancer, instead of a “cancer kid.” From egg throwing fights to splatter paint to teaching her to drive before she got her license, every day was a new adventure and although I often felt like a kindergarten teacher, I was elated at being able to give Taylor a gift I had control over, at a time when we had no control.

In addition, my husband, Bob, and I never stopped being a team and worked extremely hard to complement each other throughout our daughter’s battle. We each took on different roles and responsibilities: Bob alone would meet with the doctors, while I stayed with Taylor. I was responsible for Taylor’s day-to-day care: tracking all of her medications, learning how to minimize her suffering, and making chemo life fun. Bob, on the other hand, diligently researched treatments online almost every night and got many second opinions. This strategy worked well for us, as Taylor never felt abandoned and I didn’t have to hear what the doctors had to say.

Lastly, one of our hardest hurdles was making sure our other children didn’t get overlooked, both literally and emotionally. We tried to impress upon them that they were not alone in their emotions. We still went on family vacations when possible, brought them to the hospital for overnight “sleepovers,” and made sure they understood how much they were loved.

Ultimately, there’s no way for anyone to completely avoid the fear and concomitant pain that comes along with a cancer diagnosis; however, if you insist on living life on your own terms, it allows you to live with meaning and purpose. Find a reason to be happy, a reason to laugh, and a reason to love. If all else fails, remembers my daughter’s favorite saying: “When life stinks; wear a helmet!”

Give Kids A Chance Act

The Give Kids a Chance Act was reintroduced to the US House of Representatives by Representatives Michael McCaul and Anna Eshoo.

Nancy Goodman, CEO of Kids v Cancer said, “Adults with cancer get new combinations of targeted therapies because combinations are the best chances for cures. Why don’t children have the same chances?

“The Give Kids a Chance Act will save kids’ lives. It won’t cost taxpayers a dime. It is a bipartisan bill and passed in the House last year. This should be easy to pass, right?”

“Children should be given the same opportunity as adults to beat cancer, full stop,” said Rep. McCaul. “It has been the highlight of my career to fight for a better future for children with cancer, and the Give Kids A Chance Act is another large step in the right direction. I’m proud to re-introduce this bill, which would help save lives for years to come.”

“Today, cutting-edge cancer treatments involve a combination of drugs to improve health outcomes for adults, but there is limited research on how these therapies can help children,” said Rep. Eshoo. “Our legislation will authorize the Food and Drug Administration (FDA) to direct drug companies to conduct pediatric cancer trials on combination therapies. We’ve come long way, and this bill will ensure children have access to the newest and most effective treatments to treat and cure cancer.”

Nancy Goodman continued, “The Give Kids a Chance Act amends the RACE for Children Act, passed by Congress in 2017. Whereas the RACE Act provides that new targeted cancer therapies be studied in children’s cancers, the Give Kids a Chance Act provides that combinations of targeted cancer therapies be studied in children’s cancers.

“It is critically important for therapies to include combinations of new drugs because often single-drug therapies, even of new drugs, do not work.”

“The most powerful voices of pediatric cancer are the kids themselves.  Over 200 kids – patients, survivors and siblings – have met with Congressional offices as part of Kids v Cancer’s Climb the Hill days to discuss their experiences of pediatric cancer. Kids will continue to ask Congress to pass the Give Kids a Chance Act